Showing posts with label Liver transplantation. Show all posts
Showing posts with label Liver transplantation. Show all posts

Monday, November 29, 2010

Trisha Update–One long Scar.

trish_fundraising_posterOn the 24th of November at 5 AM Lynda (Trisha’s aunt) went into surgery to have part of her liver removed as a live donation to Trisha.  Several hours later Trisha would begin her operation which involved the liver transplant, the removal of her spleen, and the associated blood vessels.
Apparently, the spleen takes over for the liver as it loses functionality, but in order to do that that the blood supply is re-engineered and a mass of intricate blood vessels is created.  These all had to be removed and I presume sealed so that they don’t leak.
Everything went great.  Trisha now owns a scar that goes all the way across her belly like a big arching rainbow.  Since the operation she has been up and walked around.  It will take weeks to recover, but she states that she is feeling good.
I talked to my brother last week about Share Life, the organization formed to raise money to support the non-insurance covered expenses of the operation.  He indicated that they had raised around $15,000 dollars so far.  5 radio stations in Montana are supporting with advertisements and sales events have been held around Montana.  They are looking to turn this into an ongoing 501C3 corporation in order to help others in this same situation.
The recovery is long for both Lynda and Trisha.  Also more operations will be needed for Trisha as this was all to get her ready to under go the removal of her colon as a way to stop her underlying disease.   So your prayers are still very much needed and appreciated.

Friday, October 22, 2010

Trisha Update III

I wanted to provide a bit of an update on the fundraising activity to support Trisha. 

Your gift is deeply appreciated.  Thank You!
Only seeing the ChipIn! gadget leaves the impression that not much has been raised, but in actuality a lot more has been happening.  My niece Jenny sent me the following email update a few days ago:

I really don't have a total $ amount, but I did update what I know. Last weekend some ladies from church sold bracelets as a craft show and brought in around $1300. They did really well!!! We made around $1500 at the first weekend show. Dad and I did a craft show in Bozeman yesterday, it was exhausting and very slow. Only made around $400, but that was more than when we got there!

Saturday, October 02, 2010

Trisha Liver Transplant Support Fund - II

          Trisha and Mark

Mark and TrishaThe Share Life Fund is growing.  Bracelets are now being sold by many people, a local radio station in Billings and a booth will be set up at the Big Sky Gift Show.  Jenny, my niece indicated that they have sold over a hundred bracelets.  I asked that they add these numbers to the chip in gadget so that we can see the change.

We, as her family and friends, have started a benefit account called Share Life! at First Interstate Bank in Billings, MT. Our goal is to raise funds to help Trisha and her live donor with expenses through these coming months. We are estimating a need of at least $15,000 to pay for the immediate necessities for the donor to give this unbelievable gift of life to Trisha. We feel that this magnitude of generosity and unselfish giving should not have a consequence of any financial burden. These costs include 1. Travel expenses for the Donor and Caregivers, 2. Living expenses for Trisha, her husband Mark, and her Donor, including food and lodging 3. Medical supplies and medications not covered by insurance. 

 

Thank You!ShareLife Bracelet

Thank you for all those that have already given.  If you would like to give their are two ways.  First is by using a credit card or PayPal with the ChipIn! Gadget below.  The other way  is through purchasing Bracelets.   Just let me know if you would like to purchase or sell bracelets (My Email)  We are also open to other good ideas. 

A Facebook Fan page is now available to join at Share Life Face Book Page.  Please let others know.  

Also have created a Chip In Site.  This gadget can be copied to other websites and blogs.

In Trisha’s Words:

Here is a short video of Trisha, my beautiful niece:

 

Thank you for all those that have already given.  If you would like to give their are two ways.  First is by using a credit card or PayPal with the ChipIn! Gadget below.  The other way  is through purchasing Bracelets.   Just let me know if you would like to purchase or sell bracelets (My Email)  We are also open to other good ideas.

 


 
 
Your gift is deeply appreciated.  Thank You!
 
More information on Trisha

Trisha Wilson is a 27 year old native of Montana.  When Trisha was 9 years old, she was diagnosed with Auto-Immune Disease of the Liver.   At age 14, she was diagnosed with Ulcerative Colitis, a disease of the large intestine (Colon).


Over the years, both diseases have progressed, leading to her placement on the Liver Transplant List at the age of 18 years.· Because of the progressive worsening of her conditions, and the severe complications the diseases have caused, Trisha and her husband, Mark, left Billings to pursue appropriate care. They moved to Phoenix, Arizona with a "leap of faith" to receive treatment at the Mayo Clinic Hospital.

The Ulcerative Colitis has progressed so severely that Trisha was scheduled to have Colon Removal Surgery (colectomy) on August 25th, 2010, as drug treatment options were exhausted and were unable to control the disease any longer.

In preparation for this surgery, it was determined that the surgery was not possible without first removing her Spleen as it is so enlarged (at least 6 times the normal size) that it is intruding on her stomach and is blocking access to the Colon. However, the spleen is so enlarged because it has been doing the work of the liver for a long time; by removing the Spleen she runs the risk of having severe Liver problems. Therefore, to remove the Colon she must have her spleen removed, and to do that she must have a Liver transplant. Most of her "issues" are due to the progression of her liver disease which has created extreme negative effects on her surrounding organs and major vein structures. As a result of these effects her body has developed a growth of new veins off of the Spleen that also must be removed. Doctors referred to these massive new vein growths that have grown as a virtual " mine field" for the surgeon. Finally, after healing from the liver transplant and spleen removal surgery, she will then have to have her large intestine (Colon) removed, as it is toxic and presents great danger to the rest of her body.


Unfortunately (and fortunately), Trisha is not eligible for a liver from a cadaver because her MELD scores are not high enough (she is at an 11 and most patients don't have a liver transplant until they are around a 20), as set forth by the governing authorities for organ placement in 2002. It is her extenuating circumstances that lead her to the need of the Liver transplant. Therefore, her only option is to receive a partial liver transplant from a living donor; someone who is willing to donate part of their liver, has Type B blood, is physically able to go through the surgery, and passes all the required tests to donate. The live donor will give part of the right lobe of their liver to Trisha. Trisha's body will then continue to grow her liver off of the donor's piece and the donor will regrow their liver to full capacity within 4 weeks time. Truly an amazing gift!

The costs for a live donor transplant are very high, and while Trisha and her husband do have health insurance, there are many costs that aren't covered by insurance.

We, as her family and friends, have started a benefit account called Share Life! at First Interstate Bank in Billings, MT. Our goal is to raise funds to help Trisha and her live donor with expenses through these coming months. We are estimating a need of at least $15,000 to pay for the immediate necessities for the donor to give this unbelievable gift of life to Trisha. We feel that this magnitude of generosity and unselfish giving should not have a consequence of any financial burden. These costs include 1. Travel expenses for the Donor and Caregivers, 2. Living expenses for Trisha, her husband Mark, and her Donor, including food and lodging 3. Medical supplies and medications not covered by insurance.

- Our long term goal is to help bring awareness to live donations and the need to "Share" with those who's medical problems can be helped in this way. We also intend to help support the "Transplant House" in Scottsdale, Arizona, where many transplant patients stay to heal after their surgery.If you are touched by Trisha's story, and would like to help her through contributing funds or spreading her story to others, please share this link.


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Sunday, September 26, 2010

Trisha’s poster

Living donor candidate is flying to Phoenix this week for final determination of match.  Hopefully, this will put in motion the final preparations for Trisha’s liver transplant and eventual health.

Donations will be used to offset the cost to the living donor/care givers which is not covered by insurance.

Here is a poster for the fundraiser

trish_fundraising_poster

To donate click on the chip in button in the last post.

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Sunday, August 22, 2010

Putting it all in perspective.

A dear young gal, an angel in this world, is gravely ill.  Waiting to hear about transplants and about other conditions getting worse.  For an such a young angel to experience hell, is just not right.
Not too many seasons ago I was able to go back and visit my Mom before she past away.  She was only partly in this world and it started me thinking about this march of time we call a life and how the days march on no matter what we do.  My Mom at the end of her life is December Girl.
Others are represented by their location in the year.  This angel is represented as youth facing October.  It’s been a couple years since I wrote this, and her time has moved deeply into winter.  There is hope that she will be able reverse the timeline and through the miracle of today’s medicine to recapture much that has rushed by.
This makes my present problems seem so trite in comparison.
Trish we are praying for you.  May God’s will be done.
 winter3

 

December Girl

Coming home to a winter wonderland,
Approaching the fall
    Or does it just seem that way?
    Midsummer is more accurate
    The chatter in my mind errors to later seasons
        Building ladders of evidence in support
Others (closer to the new year than to spring) party in not knowing
    How Old? Two and three quarters—full of joy for the new day
    Full of the unbridled Way
Martyrs in front have shown their Way
    Least resistance or inevitable outcome?
    Such a fool—thinking was on the different Way
Feeling the piercing gazes of those behind
    Break the mold completely
        No, August always follows July.
    Forge another Way,
    Seeds planted earlier bear fruit latter on.
        Wisdom from those ahead,
            Love for those behind,
                 Presence within the now
        Young ones approaching October are hard to bear
            We experience the weariness of the autumn leaves
                Mine earned
                     Theirs incomprehensible
December girl flies all day unencumbered
    But a couple toes remain in the stream of this world
    Gone is the need for sustenance and presence.
     Now has been over taken by the all at once.
Lessons from December girl—season of the big birth.

From Musings of a Deaf Mute©